WHAT IS DRAVET SYNDROME? Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Initial seizures …
V.A.C.C. Camp: Camp “Can-Do” is the third film by award-winning filmmaker Dan Perez. The film documents the 25th anniversary year of the V.A.C.C. Camp, a free week-long overnight camp for …
CHARLEE (Children Have All Rights: Legal, Educational and Emotional) is a private not-for-profit agency that cares for children ages 0-23 years old in Miami-Dade County who have been placed in …
Last Fall, I wrote a post titled 5 Badass Women Bloggers You Should Be Following based on my discoveries as I journeyed down the rabbit hole (more on that later). …
For those of you who have been following my blog for the past year, you know my life has been touched by VACC Camp, a unique camp hosted by Miami …
High definition wireless video technology, provided by Cisco Systems, enabled young patients at Miami Children’s Hospital to enjoy a virtual visit from Santa Claus.
Breathing is something most people take for granted. Not these kids…
For almost 30 years, CHARLEE has helped thousands of children in Miami who have been placed in foster care due to abuse, abandonment and neglect. Get to know them here…
VACC Camp is a free week-long overnight camp for ventilator assisted children. Campers enjoy a range of activities not readily accessible to technology dependent children. The many volunteers that make …
Since 2004, businessman Michael Fux has been a real-life Santa Claus providing holiday gifts to the underprivileged patients & families of Miami Children’s Hospital.